Author Topic: Help with jammindude’s granddaughter  (Read 4338 times)

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Offline jammindude

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Help with jammindude’s granddaughter
« on: January 22, 2023, 06:30:23 PM »
In case any of you didn’t read the “well wishes requested” thread. Just after Christmas we discovered that my eight month old baby granddaughter had a cancerous growth on her liver. It is too large to operate so she’s been going through chemotherapy.

This is their first child and my first grandchild and they are 3000 miles away down in Orlando Florida and I feel so helpless.

The good news is that it’s apparently not spreading so they are confident that if they can shrink it down, they can then operate on it and she should be out of the woods.

But with all the hospital stays, everything is piling up and getting out of hand. So they have just started a Go Fund Me to help with bills. Any little bit helps.

https://www.gofundme.com/f/violet-liver-cancer?utm_campaign=p_cf+share-flow-1&utm_medium=copy_link&utm_source=customer

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Re: Help with jammindude’s granddaughter
« Reply #1 on: January 22, 2023, 06:40:41 PM »
Done.
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Offline Anguyen92

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Re: Help with jammindude’s granddaughter
« Reply #2 on: January 22, 2023, 06:45:16 PM »
Yep.  Same here.

Offline KevShmev

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Re: Help with jammindude’s granddaughter
« Reply #3 on: January 22, 2023, 08:06:44 PM »
Donated and happy to do it.

Offline Adami

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Re: Help with jammindude’s granddaughter
« Reply #4 on: January 22, 2023, 08:16:51 PM »
Done.
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Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #5 on: January 22, 2023, 11:56:35 PM »
What a beautiful little girl! Congratulations being so blessed with a beautiful granddaughter. So CRUSHED right now. I just cannot understand WHY THINGS LIKE THIS HAPPEN!!!!!! I'm with you and your family. Of course you will have my support.   :heart

Offline T-ski

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Re: Help with jammindude’s granddaughter
« Reply #6 on: January 23, 2023, 07:47:26 AM »
Happy to donate.
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Offline Lonk

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Re: Help with jammindude’s granddaughter
« Reply #7 on: January 23, 2023, 08:03:21 AM »
Done.
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Offline gmillerdrake

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Re: Help with jammindude’s granddaughter
« Reply #8 on: January 23, 2023, 08:09:32 AM »
$$$ sent. Will definitely keep this little sweetie in our prayers.
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Offline cramx3

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Re: Help with jammindude’s granddaughter
« Reply #9 on: January 23, 2023, 08:48:03 AM »
Done.

Offline Nick

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Re: Help with jammindude’s granddaughter
« Reply #10 on: January 23, 2023, 10:04:11 AM »
Done. Hope all goes as planned and this gets put behind your family.
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Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #11 on: January 23, 2023, 10:12:09 PM »
I want to thank you all for the outpouring of support. I’ve been a part of the dream theater online community for 25 years now, and you guys never cease to amaze me.

Thank you all. No matter if you gave or just thought of me. You guys mean a lot to me.
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Than the pride that divides when a colorful rag is unfurled." - Neil Peart

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Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #12 on: January 23, 2023, 10:16:39 PM »
I want to thank you all for the outpouring of support. I’ve been a part of the dream theater online community for 25 years now, and you guys never cease to amaze me.

Thank you all. No matter if you gave or just thought of me. You guys mean a lot to me.

 :heart would it be too much to keep us updated? I understand either way. Donated and thinking of you and your family.  :heart

Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #13 on: January 23, 2023, 10:55:03 PM »
I will say this. They are back home for the first time. I guess chemo is going to be outpatient from here on out. I’ve been told that they are making progress and the cancer is shrinking. But as of right now, I don’t know how long it will take before they can get to a point where they can perform surgery.

Even I only get news in bits and pieces. They do let me read to the baby a bedtime story every night on FaceTime. So I do enjoy that. But they are dealing with a lot right now and so the news only comes in bits and pieces from this far away.
"Better the pride that resides in a citizen of the world.
Than the pride that divides when a colorful rag is unfurled." - Neil Peart

The Jammin Dude Show - https://www.youtube.com/user/jammindude

Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #14 on: January 23, 2023, 11:05:35 PM »
I will say this. They are back home for the first time. I guess chemo is going to be outpatient from here on out. I’ve been told that they are making progress and the cancer is shrinking. But as of right now, I don’t know how long it will take before they can get to a point where they can perform surgery.

Even I only get news in bits and pieces. They do let me read to the baby a bedtime story every night on FaceTime. So I do enjoy that. But they are dealing with a lot right now and so the news only comes in bits and pieces from this far away.

 :heart :heart :heart :heart :heart

Offline MinistroRaven

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Re: Help with jammindude’s granddaughter
« Reply #15 on: January 24, 2023, 05:21:30 AM »
Done and I also shared the link on my FB

Prayers and well wishes for all of you buddy.

Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #16 on: February 02, 2023, 12:32:31 PM »
Thinking of her and your family! Hoping things are going well.  :heart

Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #17 on: February 02, 2023, 01:38:54 PM »
Thank you guys. Thank all of you so much. I wish I had more news, but there’s not much new to report.

I know that my son and DIL both felt that staff at the general hospital they were at weren’t including them in conversations about treatment to the degree they would like. So they moved to Arnold Palmer children’s hospital (I think that’s the name) and they said they are much happier and being treated with more respect.

There was more chemo on Monday, but no updates yet on the progress of trying to shrink it down. 

I do get to read her a bedtime story over FaceTime every night, and she seems to look forward to that. But she doesn’t smile much and it breaks my heart because I know the chemo makes her feel icky and she doesn’t understand why.  :'(
"Better the pride that resides in a citizen of the world.
Than the pride that divides when a colorful rag is unfurled." - Neil Peart

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Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #18 on: April 10, 2023, 07:41:08 PM »
I am checking in to see how your granddaughter is doing. Still thinking and praying for her and your entire family. Hoping for some good news. :heart

Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #19 on: April 10, 2023, 10:40:44 PM »
I’ve been trying to figure out what to say about this.

The baby is stable and being treated. Right now they are looking at the possibility of doing exploratory surgery to find out if the cancer can be removed or if she is going to need a transplant.

There is a lot of other drama going on right now that I’m planning on doing a more detailed post at some point. But a lot of things are happening that I’m not at liberty to go into detail on at this time. 

Right now I’m just broken hearted because she is 10 months old now and she has spent almost 4 months in a hospital bed. She hasn’t even had the freedom to learn to crawl. She gets physical therapy to work her legs, but it’s just not the same.

Trust me. It might take a couple more months, but I will have a lot to vent at some point. Timing is an issue right now.
"Better the pride that resides in a citizen of the world.
Than the pride that divides when a colorful rag is unfurled." - Neil Peart

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Offline cramx3

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Re: Help with jammindude’s granddaughter
« Reply #20 on: April 11, 2023, 08:01:49 AM »
Very sad and hard to read this update.  Can't imagine the pain for you and the family. All you can do is keep fighting and stay strong.

Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #21 on: April 11, 2023, 10:55:18 AM »
Thank you for the update, we are all here for you!  :heart

Offline MinistroRaven

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Re: Help with jammindude’s granddaughter
« Reply #22 on: April 11, 2023, 11:52:34 AM »
Praying for you all buddy.

Offline lonestar

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Re: Help with jammindude’s granddaughter
« Reply #23 on: April 11, 2023, 11:55:56 AM »
I can't even imagine...nothing but love for you all... :heart

Offline Dublagent66

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Re: Help with jammindude’s granddaughter
« Reply #24 on: April 11, 2023, 02:39:08 PM »
It says not accepting donations, but the total is over 5k!  Nice!  Hope all works out for the best.
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Offline Harmony

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Re: Help with jammindude’s granddaughter
« Reply #25 on: April 12, 2023, 03:50:03 PM »
Jammin - my thoughts continue to be with you and your family.  This has got to be a gut wrenching experience for you all and I can't even fathom how it must feel to be unable to have her home.

Never give up hope - kids are amazingly resilient.   :heart
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Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #26 on: May 05, 2023, 01:47:03 PM »
This has been really difficult. Because I’m normally a very open book person. But extended family drama forced me to play many things closer to the chest than I care to.

I don’t want to get off in the weeds here, and I’m not really comfortable discussing the details, but the short version is that because of a complete crap storm of issues and circumstances, my granddaughter is a ward of the state, and my daughter-in-law’s aunt is her guardian. My son, my daughter-in-law, and her mother (the other grandmother) are only allowed to see her very limited and only under supervision.

Some of this is the state interceding because things looked bad, but were not entirely what they seemed…but then was grossly exacerbated by my son and daughter-in-law reacting as if they were on Jerry Springer and this lending credence to the circumstantial things that looked bad.

The whole thing is a mess and I can’t get into it any more than that.

But she has been going through chemo and as far as we know (they are limited in what they can share with us) she is having surgery next Tuesday in an attempt to remove the cancer from her liver and see if they can save enough of her existing liver that she won’t need a transplant.

We just flew down to Florida yesterday, and we are in a locked down wing at AdventHealth hospital in Orlando, and we had to be cleared by social workers so that we could visit her this week and into next week.

My son and daughter-in-law questioned the care that she is receiving here and they were trying to move her up to Boston Children’s Hospital, but they no longer have the legal authority to move her at all. So here she stays. The operation is next Tuesday and we will be here until next Thursday. Asking for continued good vibes
« Last Edit: May 05, 2023, 06:27:56 PM by jammindude »
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Offline Stadler

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Re: Help with jammindude’s granddaughter
« Reply #27 on: May 05, 2023, 02:05:55 PM »
Thinking about you, brother.  Hope it all turns out well.

Offline TAC

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Re: Help with jammindude’s granddaughter
« Reply #28 on: May 05, 2023, 02:19:20 PM »
Oh boy. That's awful.
would have thought the same thing but seeing the OP was TAC i immediately thought Maiden or DT related
Winger Theater Forums........or WTF.  ;D
TAC got a higher score than me in the electronic round? Honestly, can I just drop out now? :lol

Offline Anguyen92

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Re: Help with jammindude’s granddaughter
« Reply #29 on: May 05, 2023, 02:48:17 PM »
Oh man, that situation looks very strenuous on top of the health issues already.  At the end of the day, all of you cares about the well-being of your granddaughter and we all here are hoping for the good vibes as well.

Offline Cool Chris

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Re: Help with jammindude’s granddaughter
« Reply #30 on: May 05, 2023, 09:45:47 PM »
Appreciate the update. Take care of each other.
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Offline gmillerdrake

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Re: Help with jammindude’s granddaughter
« Reply #31 on: May 06, 2023, 09:50:13 AM »
Man....that was tough to read. Feel for you and your family, this is a tough situation. Hoping the 'adults' involved get straightened out and will keep praying for that sweet little baby that her body responds to the treatments and she makes a full recovery.
Without Faith.....Without Hope.....There can be No Peace of Mind

Offline Glasser

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Re: Help with jammindude’s granddaughter
« Reply #32 on: May 06, 2023, 12:54:20 PM »
Keep your faith strong! I'm sending positive vibes and love to you and your family!!!  :heart

Offline jammindude

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Re: Help with jammindude’s granddaughter
« Reply #33 on: May 06, 2023, 01:33:18 PM »
We’ve only been here two days and all the nurses say she’s been a *completely* different baby since we arrived.

She’s napping right now, but we’ve been reading her Dr Suess and some Bible stories all day long. I think the personal interaction is what’s making the biggest difference.
"Better the pride that resides in a citizen of the world.
Than the pride that divides when a colorful rag is unfurled." - Neil Peart

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Offline TAC

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Re: Help with jammindude’s granddaughter
« Reply #34 on: May 06, 2023, 01:39:12 PM »
You guys were sent. Keep it up!
would have thought the same thing but seeing the OP was TAC i immediately thought Maiden or DT related
Winger Theater Forums........or WTF.  ;D
TAC got a higher score than me in the electronic round? Honestly, can I just drop out now? :lol